https://www.rarediseaserenegades.org/blog-3 daily 0.75 2023-07-14 https://www.rarediseaserenegades.org/blog-3/whats-holding-us-back-to-dream-big-and-do-things-differently monthly 0.5 2022-04-06 https://www.rarediseaserenegades.org/blog-3/r4b068dz643yrpdv6rfbck8euqy6cc monthly 0.5 2022-04-06 https://www.rarediseaserenegades.org/blog-3/disabilitypride monthly 0.5 2023-07-14 https://www.rarediseaserenegades.org/blog-3/blog-post-title-one-bewld monthly 0.5 2022-03-23 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/26beea14-6731-4a76-9e1c-5de92732d880/Lester+family-4.jpg Blog 3 - A Non-Profit Started Out Of Frustration - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseaserenegades.org/home daily 1.0 2024-03-11 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/a24ed3a6-b1b4-41a6-a806-b40a56047f0a/BW_Kids_02.png Home - WE DON’T WAIT. WE GO TO WORK. Over 7,000 rare diseases affect more than 30 million people in the United States. Many rare conditions are life-threatening, present in a way that’s unique to each individual, and most do not have any interventions at all, much less a cure. So we work directly with organizations researching cutting-edge treatments, drugs and technology — like gene therapy or gene editing — to help them get the funding they desperately need. https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/f82a6b3e-133f-46e8-97d2-2722bd9cc83b/BW_Kids_03.png Home - BUT WE NEED YOUR HELP. Billions and billions of dollars are spent on disease research every year. But funding for rare disease research, interventions and cures often have to focus on individualized solutions and are simply not economical. As a result, they often get overlooked and neglected. We’re here to help that research and those cures get the funding they desperately need. And that’s where you come in. With your support, we can help move science forward and ensure every child suffering from a rare disease has access to the cure they’ve been hoping for. https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/4ebeac60-4b1d-4140-9a25-180b792010b5/Kids_03.png Home - LET’S SPEED UP SCIENCE Your donation will help us accelerate tailored, life-saving therapies for people with rare diseases who need help. You’ll be sponsoring the scientists working to make a difference in people’s lives. The researchers, trying to unlock the potential of new technologies. And the orphan drugs that aren’t profitable on a large scale, but have immense potential for individuals in need. So join us and together we can help speed up science and cure rare diseases. https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1644434665524-WZTWI992WN6BAFA9Z4EV/Event_Icon.png Home https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1644434716488-2AB0A5MX739663N7XURA/Involved_Icon.png Home https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1644434687724-6RUHRHCKYZVYK3YLHUVT/Donate_Icon.png Home https://www.rarediseaserenegades.org/donate daily 0.75 2024-03-11 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1646597973620-7H07LC6ZKSI8T56BE7FV/Tax_Advantage_Icon.png Donate https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1646597940251-JSKP23VY0Z3FCJZ3ES2V/Credit_Card_Icon.png Donate https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1646597953330-9UX3MHZWWKEXWIPUB2RM/Check_Icon.png Donate https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1646598037497-0R4EDA4F13S0FI442A41/Bank_Icon.png Donate https://www.rarediseaserenegades.org/events daily 0.75 2023-09-02 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/8a822b0e-4891-446f-a98e-2e2ae137336c/482ed69e-8e4e-4bd3-9699-a127dcf817b6+%281%29.jpeg Get Involved - 2022 Medtronic Twin Cities Marathon/10 Miler A team of 25 runners conquered the Medtronic Twin Cities Marathon and 10-Mile races on October 2, 2022. We raised more than $28,000 to help accelerate science. We are already looking forward to the 2023 race. If you want to run with us drop us a line! https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/0d3ff660-c527-43d7-9c4e-4da881427e1e/Renegade+Ride+Starting+Line+1.JPG Get Involved - Renegade Ride 2022 June 11th We rode 25 miles in central New Jersey to raise money and awareness for rare diseases. Starting and finishing at Hilltop Bicycles in Madison, NJ with the post race party at Sunday Motor Cafe, 15 riders completed the loop around The Great Swamp National Wildlife Refuge. We raised more than $8000! If you’d like to support us, please donate. https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/bcc9a210-8815-4abc-a4eb-81ea572baac7/BC-.jpg Get Involved - Brian Chartrand Live on Facebook Brian is a singer/songwriter from Phoenix, AZ. He is also a Renegade! He went live on April 3rd to benefit Rare Disease Renegades and help celebrate the launch of the non-profit. You can still watch his performance at Brian Chartrand Music on Facebook. Click below. https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/a78c6f69-25d6-4a71-9f5e-f2b70d86aa03/IMG_1378.jpeg Get Involved https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/b764b509-fe89-4bc5-9b78-2c622a815b8a/b7cd051b-ea69-4e08-8da3-9364c8975ede.jpg Get Involved https://www.rarediseaserenegades.org/aboutus daily 0.75 2024-05-29 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/b50271f0-9fac-45cc-a6c9-b54d21dd0de1/Joelle+Lester+Headshot.jpeg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/a7250a3e-244a-4764-b2b2-bcdf5320081c/Headshot.jpg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/6075c944-f66b-4309-b775-f91805a07f7a/Andrew+Coop+Headshot.jpeg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/610463b9-a974-461c-bee2-5213e3e94ce5/Colleen+Proctor+Headshot.jpeg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/e4d359de-735d-4750-95b4-b5e61fd32864/IMG_8844.jpg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/ebbe3479-9275-4d7d-a736-b049bf44def9/NancyReyes_2795.jpeg https://www.rarediseaserenegades.org/initiatives-1 daily 0.75 2022-03-11 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/1647037268650-VL7JUCXGX5J4JUBXBW2C/CureRareDisease+Cover+Photo.jpeg Initiatives https://www.rarediseaserenegades.org/reno daily 0.75 2023-08-01 https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/5920f24a-7a42-4cc4-9994-db379cf87a73/20140301_Trade-151_0124-copy.jpg https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/189ef269-62dc-4d6f-8bc2-c40884b9bf08/Aro+Ha_0380.jpg https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/2439f310-5041-44dd-a056-ad5bfa2b0b27/AroHa_02.jpg https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/ebc5a905-f3e6-4902-a9b4-eab6eea46034/bdtxjz__fleur__42+3.jpg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/7304e985-ea85-41fd-85a2-c5d51f131e8e/IMG_2949.jpeg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/417c5041-f9bc-4636-801a-85f7127dd998/Inclinator+drive_hydraulic.jpg https://www.rarediseaserenegades.org/minnesota-event daily 0.75 2023-09-02 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/4e93ca72-c291-4ef7-93b2-7b6381f4504c/IMG_0429.jpeg https://www.rarediseaserenegades.org/what-is-duchenne daily 0.75 2023-10-24 https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/43b19984-3900-4db1-abc7-078379c4ee29/AboutDuchenne_GeneChanges-1024x565.png https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/f040f700-bb9b-4290-8e3f-a894ad036012/Causes-BMD-DMD_muscle-cell.jpg https://images.squarespace-cdn.com/content/v1/61f9dac7f4cccc355e2c8c19/13ba5a6f-9276-4533-8bb0-57d59164fdae/Overview-bmd_dmd_1+Picture+with+Caption.jpeg