EVENTS

2023 Events

  • Minnesota

    September 29, 2023 @ 7:00pm

    Run Renegades Run!

    Join us for the Renegade Rollick party, run with the team, or come out to cheer on the runners!

  • Mid Century Modern Renovation

    Massachusetts

    An evening with This Old House.

    Thursday, October 26, 2023 @ 6:00pm

    Join us for an exclusive look inside the current Season 45 Project House. Meet cast and crew of the show including Kevin O’Connor, Tom Silva, Charlie Silva, TOH Producers and Director. Explore the ways the homeowners are creating an accessible home for their son.

 

Past Events

The Inaugural Renegade Ride

In the summer of 2021, before we founded Rare Disease Renegades, we started to raise money to accelerate the science. My oldest child, Warwick, and I rode from Chatham, NJ across NYC to Long Beach, Long Island, NY. It was a 6 hour, 60 mile adventure and we were able to raise more than $32,000 for Cure Rare Disease through Facebook and direct donations. Come ride with us in the video below.

 
 

2022 Medtronic Twin Cities Marathon/10 Miler

A team of 25 runners conquered the Medtronic Twin Cities Marathon and 10-Mile races on October 2, 2022. We raised more than $28,000 to help accelerate science. We are already looking forward to the 2023 race. If you want to run with us drop us a line!

Renegade Ride 2022

June 11th

We rode 25 miles in central New Jersey to raise money and awareness for rare diseases. Starting and finishing at Hilltop Bicycles in Madison, NJ with the post race party at Sunday Motor Cafe, 15 riders completed the loop around The Great Swamp National Wildlife Refuge. We raised more than $8000! If you’d like to support us, please donate.

Brian Chartrand Live on Facebook

Brian is a singer/songwriter from Phoenix, AZ. He is also a Renegade! He went live on April 3rd to benefit Rare Disease Renegades and help celebrate the launch of the non-profit. You can still watch his performance at Brian Chartrand Music on Facebook. Click below.

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